Articles Posted in Independent Living

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During the past several months, I have been hired to find senior living options for many clients who have been diagnosed with depression. Some of them have been at the independent living level of care. I was fortunate to sit down with several of my clients and find out what it is like to have the disease. I must admit that I have a new sympathy for anyone with the diagnosis.

Depression is a disease that is characterized by feelings of sadness and at times uselessness that affect an individual’s ability to function. The causes aren’t known, but some of the things that are thought to to cause it are changes in the brain, family history, environment, and life’s experiences. For example, senior’s become very depressed after the loss of a spouse. During the holidays, the depression often intensifies as the senior further contemplates the loss of a loved one.

My clients have shared that they often feel tired, restless, irritable, worthless, and have trouble sleeping. On the other hand, they may sleep too much or overeat. They also experience symptoms like a stomach ache that won’t go away, excessive crying, strange thoughts and thoughts of suicide. No one’s symptoms are ever the same. The depression can also be masked by other illnesses for which the senior has already been diagnosed and is taking medications.

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I read the attached article, “Adult Children Ignoring Confucius Risk Lawsuits in China,” about the elderly having the option of suing their children if they don’t visit them enough while they are in a long term care community. I used to be the Marketing/Admissions Director of a large Continuing Care Retirement Community where I dealt with admitting seniors who were at the independent, assisted, or nursing home levels of care. The article made me reminisce about acting as, “manager of the weekend,” and some of the experiences I had with family members who were regular visitors. In other words, the families were the polar opposites of the “no shows” referred to in this article.

As manager of the weekend, each staff member at the community had to take a turn at watching over the place. This meant taking care of the needs of the residents, as well as meeting and greeting the family members who came to visit on the weekends. The manager was instructed to walk the hallways to observe cleanliness and anything that seemed out of the ordinary. Another assignment was to circulate in the dining rooms during meal times, ask the residents about the acceptability of the food, and to eat the food to make our own assessment. The best part of acting as the “manager of the weekend” was that I got to see all of the visiting family members that I had previously been involved with during the admissions process. However, I chuckled at the content of this article because some of the families didn’t deserve to be penalized because they didn’t visit enough. They deserved to be scolded for what they did while they were they visiting loved ones, particularly the seniors who were at the independent level. Let me share some of the events with you.

There was a woman who had lived at the community for a number of years and was practically a model resident. She never had a single hair out of place and was always dressed in the latest fashions with a hand bag to match. She had a son who lived in the neighborhood. He visited her each weekend without fail. One time I noticed a large bottle of liquor in her room. Residents at the independent level were allowed to keep liquor. Since independent living is just like an apartment building, there were no rules against it. I was told by another staff member that she kept it to offer her son a cocktail when he visited. The problem was that while I was walking the hallways after the son had left, I found her wandering the hallways half looped on several occasions. I had to escort her to the dining room to make sure that she ate. The same thing happened with another resident whose girlfriend picked him up on Saturdays to take him out for dinner.

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The firestorm controversy regarding the refusal of a retirement community nurse to administer CPR to an 87 year old resident of its independent living section has been fueled, in part, by faulty media coverage. On the morning of March 4, 2013, I heard a reporter on a local news radio station in Chicago refer to the Glenwood Retirement Community in Bakersfield, California as a “nursing home,” which is a mistake. Many national news announcers made the same mistake. The more accurate terms would have been “senior retirement community” and “independent living.”

The distinctions do make a difference — not necessarily for the moral and ethical implications of the case (which are gravely serious and merit solemn discussion in a nation founded on life-affirming Judeo Christian values), but for the majority of Americans who might not understand the wide range of senior living options.

Glenwood Gardens is a community that offers independent living. The independent living unit where the decedent lived does not require any sort of licensing. Glenwood’s licensed assisted living units and nursing home are located on adjacent property. The independent living facility is not unlike a regular apartment building. Its residents are supposed be able to function with very little assistance except, perhaps, for some meal preparation and housekeeping help. Therefore, during the widely reported incident, the Glenwood nursing staff member was following business protocol when she called 911. Her choice not to administer CPR to the resident who later died is something that she will have to live with for the rest of her life.

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This is a question that is asked of me and often causes controversy among the families that I serve. My goal is to find the best answer, and every situation is different. In the seven years that I have owned my senior living business, no two cases have been exactly alike. However, when a senior is still capable of making his/her own decisions, s/he almost always wants to remain in the home as long as possible. The only exceptions to the rule are if a senior is lonely and wants the socialization of being in a community, ot if medical issues no longer allow the senior to remain at home, or s/he can no longer afford the luxury of in-home care. Placement in a community is often the second choice to remaining in the home and normally arises when the senior is exhausting their funds. However, caution needs to be taken with this strategy, as many nursing homes are requiring a year or even two years of private pay before a person is admitted. This insures against the immediate filing of a Medicaid application, which can take up to a year for a resident’s reimbursement.

If you have a senior loved one who may need some help with his or her activities of daily living, I share below the ballpark figures for non-medical home care and long-term care community costs in the Cook, Will, Dupage, Lake. and Kane Counties in Illinois.

Non-Medical

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Couples who want to remain together but require different levels of care always present some very complicated challenges. One person may want to stay in the home, the other may not. A member of a couple may develop health challenges that may necessitate a move to a nursing home due to medical and financial reasons. I always show people the costs of both stay-at-home care and moving to a community. The problem with the latter is that many communities are not set up to accommodate different levels of care. A community’s capacity to handle multiple levels of care depends upon the way its apartments are licensed. Some communities are capable of handling residents who are on the independent level and who need assisted living (standby care and some hands on care with bathing, dressing, eating, toileting, transferring, and walking), often referred to as “swing apartments” because they are licensed to accommodate people at both levels. The situation becomes more complicated when one person needs nursing home care and the other remains at the independent or assisted level. Nursing home care requires yet another level of licensing which doesn’t allow couples to remain together unless their health issues require it. (For example, a person who is independent cannot occupy a nursing home room with his/her spouse unless s/he too needs the care). I recently worked with a couple who needd help sorting through these issues, as exemplified in the following real life story.

REAL LIFE STORY

My clients were the children of parents in the Chicago metro area who were in their early seventies (clients who were much younger than those I normally work with). Their parents were living in a lovely home with an urban setting. Their mother had been suffering from a disease that caused recurring seizures every few years. The latest bout with the disease caused her to be sent home with a full-time, non-medical caregiver who was costing them $350 per day. Their mother needed help with most of her activities of daily living, but could feed herself and walk with a walker. Their father, on the other hand, was independent. The caregiver was also preparing their meals, doing light housekeeping, and running errands. The children hired me because they lived in a suburb more than 20 miles away from their parents and were busy with their own families. They wanted their parents to move to the same suburb. In addition, they were uncomfortable with the existing home care arrangement because they felt there was no ongoing support system in case their mother became more ill. They were not comfortable with the “live in” situation and preferred to order a lesser number of hours if possible. The cost of maintaining the home plus the home care services was becoming prohibitive. The parents had been married for 50 years and wanted to remain together as long as possible. The dad was not social and wanted to “do his own thing.” During rehabilitation, the mom had enjoyed art therapy classes, such as water color painting, and music appreciation classes. I was instructed to find a community that would allow the couple to continue their current living situation, with a continuing care support system, in the kids’ suburb, with opportunities for socializing for their mom. I was able to come up with three options in their requested location.

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If you carefully scrutinize the activity schedule at a long term care community and correlate it to the seniors needs, his/her independence could be enhanced.

I was the Admissions Director of a Continuing Care Retirement Community located in Cook County near the Chicago metropolitan area. Many of the children who came to tour the home told me they were concerned that their loved one would lose their independence if they moved to a retirement community. It used to amuse me that after expressing this concern, the children would spend so little time studying the activity schedule. Instead they would remark, “Oh this is great! They have bingo, baggo, and bunco!” I used to refer to it as the “three Bs!” While it is important to many seniors to have bingo available, you will have to be more thorough when assisting them with finding the right retirement community if you aim to preserve their independence. Studying the activity schedule to ensure that a community is providing serious mental stimulation for seniors is a task that shouldn’t be taken lightly. As a senior living advisor who has evaluated hundreds of long term care communities in the Chicago area, I can share some activity tips with you.

I have seen many of the retirement communities offer brain fitness programs in order to keep their residents mentally fit. Some of the homes will allow your loved one to participate in their brain fitness programs as a non-resident of the community. I enrolled in one of the classes at a local retirement community because I was curious to see what the programs had to offer. They were offering the brain training program created by Posit Science, that can help anyone exercise their memory and enhance the ability to focus. Although the program is computer based, the senior doesn’t have to be computer literate. They only need to operate a mouse. There were many independent seniors who were taking the course to enhance their driving skills. One of the programs simulated a fictitious car ride where dangers such as a child chasing a bill into the street popped up on the screen. The program requires the driver to react quickly in order to avoid having an accident.

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As a senior living advisor, I recommend that my clients who are at the independent living or assisted living level take a trial stay at a long-term care community before they make a commitment to move in. This will allow a senior to sample the food, try the activities, socialize with potential fellow residents, and decide if they like congregate living.

Sometimes the communities will not allow a trial stay. At other times, it may be required that the senior stays for at least 30 days. Personally, I am in favor of the 30 day requirement, because a stay of two days or a week isn’t going to give the senior the ,”big picture,” of retirement community life.

A short stay or “respite” at a senior living community is normally treated like a regular admission. The senior may have to submit a medical history and physical form from their primary care doctor, along with the results of a TB test that is negative. This information ensures that a community can meet the resident’s medical needs. I recommend that my clients request the medical information several weeks prior to the anticipated admission. Collecting the information from a physician’s office can be extremely slow and often delays the admission process. Many physician’s will not complete the forms unless they have seen the patient recently. The homes also will not accept medical information that is too old.

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Here is a snapshot of the long-term care options available and their approximate costs. Not only can Andrea help you place your loved one in a facility that meets your needs, she can also evaluate your friend or loved one to determine what type of care is appropriate.

Independent Living Communities – The senior can function on his or her own, but may receive help with housekeeping and meals. The cost runs about $1,500 to $3,000 per month, depending upon the community.

Assisted Living – The senior needs help with some of his or her activities of daily living (ADLs). This includes help with bathing, dressing, toileting, transferring, eating, escorting and assistance with medications. The estimated cost is $3,800 – $6,000 per month. It is not “hands-on” care; it is “standby” assistance.

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I often have seniors and their families hire me to find the right community because the senior is lonely and wants to socialize with people his/her own age. The feeling of being isolated and depressed while eating alone is often a major cause for concern. While I empathize with such concerns, I always encourage the senior to sample the food and the “communal dining experience” before signing on the dotted line at a new home. The senior could be eating one to three meals a day at the community depending on the level of care and type of dining program offered. If a senior could be spending up to 30% of his or her time eating, the food better be good. Couple that with table mates who have personality clashes and you could be headed into a situation that spoils the whole retirement experience.

Most of the time, admissions directors are more than happy to have a prospective resident and his or her family members sample the food. However, I recommend that the sampling be conducted during an ordinary meal, rather than during a special event. The food at an event won’t be reflective of a meal that is typically served. I also recommend that the senior be seated with some of the residents during the sample meal. That way, s/he will always get truthful opinions of what the food is really like on a daily basis. It also allows the senior to sample the social setting and resident personalities. Some communities have unassigned seating. Others will purposely mix the residents to prevent cliques from forming at meal time.

Please be advised that independent living and assisted communities may not have a dietician on staff. Many of them note “heart healthy” and sugar free foods on their menus. Then, it’s up to the senior to behave. If your loved one needs a special diet like pureed or mechanical, ask if that can be accommodated. I have even arranged for my nursing home clients who are lucid and contemplating a change in nursing homes to travel to the proposed new home via Medicar to take a tour and sample the food.

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“When choosing a long-term care community for your loved one, make sure his/her care-level needs and financial realities are appropriately assessed.”

Greetings!

As part of my services, I always meet and get to know the person I’m about to place. My past experience as an admissions director of a continuing care community (one offering Independent living, assisted living, and a nursing home on a single campus) taught me how to assess an individual’s mobility and cognitive impairment (if any). An assessment also affords me the opportunity to meet family members, see the person’s current living conditions, and find out the person’s financial realities. All of these factors play an important part in the options I present to my clients. As families who “go it alone” and clients of other service providers have sometimes discovered too late, a mistake in assessing any one of these factors can result in misplacement of a client. This, in turn, can lead to a rapid decline in a senior’s well-being, more serious adversities, and even yet another move – a heartache and inconvenience that no resident or family should ever have to endure. This month’s real life story emphasizes that fact.

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