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In this past week, I have had many clients approach me with long term care placements involving potential shortages of funds. All of them were approaching what I call the long-term care “black hole.” Let me explain exactly what I mean by that as it will vary according to the level of care your loved one needs.

If your loved one needs skilled nursing care the costs in Illinois run about $6,000 – $9,000 a month. Some of the Alzheimer’s or dementia units can cost more. Right now, It is taking Medicaid (The Federal program designed for those who cannot pay for long-term care and administered by each state) close to a year to reimburse the nursing homes for residents who are participants in the Medicaid program. Therefore, most of the nursing homes want to see a resident pay privately for a year before submitting an application for Medicaid. Even the nursing homes that deliver less than desirable care are not making access to public aid easy. So, the bottom line is, if your loved one going to need nursing care, you should try to set aside at least $72,000 for their care if you’d like them to enter a better nursing home . If your loved one has less than that, they are in the black hole. You should expect some difficulty with the placement.

In the case of skilled nursing care, the number for the black hole is much easier to quantify. If your loved one needs assisted living, the amount of funds needed is more difficult to pinpoint. That’s because you have no way of knowing how long your loved one will remain at that level of care. Assisted living in Illinois can run $3,500 to $6,000 a month. I have seen some of the memory care units run as high as $7,200. You will have to make some financial assumptions if your senior may need nursing home care down the road.

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As a Certified Guardian, I am often asked to act as a senior’s Power of Attorney for Health Care when s/he doesn’t have a family member who is willing or fit to act for him/her. Simply stated, the Power of Attorney for Health Care grants the designated “agent” control over the senior’s decision-making, including end-of-life decisions if the senior lacks the capacity make the decisions on his/her own. As a Power of Attorney For Health Care, you should be thoroughly familiar with a senior’s personal, financial, and medical history before accepting this serious responsibility. Please read the following real life story that makes my point.

REAL LIFE STORY

My client is an 85 year-old woman who had been living independently. I was called at the last minute to act as her Power Of Attorney (POA) For Health Care the day before she was to move to independent living at a retirement community. Independent living means that the senior can basically function on their own with some assistance with meal preparation and housekeeping. The woman’s former POA had moved out of state and had written her a formal letter of resignation. A trust company had been appointed to act as her Power of Attorney For Finances. All of this occurred about three months ago.

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As a senior living advisor and Certified Care Manager, I always conduct a face to face assessment of my client. This gives me an opportunity to evaluate him/her from a cognitive and functional standpoint. I observe the environment s/he is living in, talk with the family about the individual’s personal history, finances, and support system. That way, I can make an assessment of how I can improve the senior’s quality of life by recommending services that allow them to remain at home (That is, via the most economical and efficient services). Or, I can help them ascertain whether placement in a community would be more appropriate. In either case, I always include the senior in the care plan if they are able to participate. Just as I do my “in person” due diligence, you should do the same when researching senior living options. Here is what you should expect if you rely on the internet as a credible source of information:

1. I recently used Google to research the words “Chicago nursing homes.” I received over 44,000,000 returns. When you look at the websites for long term care communities, they rarely give you in depth information, and the prices are almost never listed.

2. Some of the websites will show the viewer the most newly decorated or beautiful areas of the property. They neglect to show the overall big picture. I have arrived at many of these organizations to find that the pictures on the site were no reflection of what the community was really like. Conversely, some of my clients have looked at the sites for the communities I have recommended to them. One my my clients reportedly logged on, and told me she was disappointed with how dingy and oppressive they looked. In truth, the facilities were beautiful and the pictures that were posted didn’t do them justice.

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This is a question that is asked of me and often causes controversy among the families that I serve. My goal is to find the best answer, and every situation is different. In the seven years that I have owned my senior living business, no two cases have been exactly alike. However, when a senior is still capable of making his/her own decisions, s/he almost always wants to remain in the home as long as possible. The only exceptions to the rule are if a senior is lonely and wants the socialization of being in a community, ot if medical issues no longer allow the senior to remain at home, or s/he can no longer afford the luxury of in-home care. Placement in a community is often the second choice to remaining in the home and normally arises when the senior is exhausting their funds. However, caution needs to be taken with this strategy, as many nursing homes are requiring a year or even two years of private pay before a person is admitted. This insures against the immediate filing of a Medicaid application, which can take up to a year for a resident’s reimbursement.

If you have a senior loved one who may need some help with his or her activities of daily living, I share below the ballpark figures for non-medical home care and long-term care community costs in the Cook, Will, Dupage, Lake. and Kane Counties in Illinois.

Non-Medical

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Couples who want to remain together but require different levels of care always present some very complicated challenges. One person may want to stay in the home, the other may not. A member of a couple may develop health challenges that may necessitate a move to a nursing home due to medical and financial reasons. I always show people the costs of both stay-at-home care and moving to a community. The problem with the latter is that many communities are not set up to accommodate different levels of care. A community’s capacity to handle multiple levels of care depends upon the way its apartments are licensed. Some communities are capable of handling residents who are on the independent level and who need assisted living (standby care and some hands on care with bathing, dressing, eating, toileting, transferring, and walking), often referred to as “swing apartments” because they are licensed to accommodate people at both levels. The situation becomes more complicated when one person needs nursing home care and the other remains at the independent or assisted level. Nursing home care requires yet another level of licensing which doesn’t allow couples to remain together unless their health issues require it. (For example, a person who is independent cannot occupy a nursing home room with his/her spouse unless s/he too needs the care). I recently worked with a couple who needd help sorting through these issues, as exemplified in the following real life story.

REAL LIFE STORY

My clients were the children of parents in the Chicago metro area who were in their early seventies (clients who were much younger than those I normally work with). Their parents were living in a lovely home with an urban setting. Their mother had been suffering from a disease that caused recurring seizures every few years. The latest bout with the disease caused her to be sent home with a full-time, non-medical caregiver who was costing them $350 per day. Their mother needed help with most of her activities of daily living, but could feed herself and walk with a walker. Their father, on the other hand, was independent. The caregiver was also preparing their meals, doing light housekeeping, and running errands. The children hired me because they lived in a suburb more than 20 miles away from their parents and were busy with their own families. They wanted their parents to move to the same suburb. In addition, they were uncomfortable with the existing home care arrangement because they felt there was no ongoing support system in case their mother became more ill. They were not comfortable with the “live in” situation and preferred to order a lesser number of hours if possible. The cost of maintaining the home plus the home care services was becoming prohibitive. The parents had been married for 50 years and wanted to remain together as long as possible. The dad was not social and wanted to “do his own thing.” During rehabilitation, the mom had enjoyed art therapy classes, such as water color painting, and music appreciation classes. I was instructed to find a community that would allow the couple to continue their current living situation, with a continuing care support system, in the kids’ suburb, with opportunities for socializing for their mom. I was able to come up with three options in their requested location.

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If your loved one requires a Medicaid bed in the Chicago metropolitan area and the payor source is Public Aid Pending (PAP), you may be in for a difficult encounter. What do I mean by Public Aid Pending? It means that an individual needs the support of the Medicaid program (Federal system administered by each state that grants assistance for long term care to people who can’t pay privately.), but his/her application is in the process of being prepared. Or, the application has been prepared, filed, but isn’t approved with a case number. Due to the implementation of the SMART Act (Save Medicaid Access and Resources Together), Illinois is now one of the toughest states in which to obtain Medicaid.

Right now, the nursing homes aren’t too willing to accept residents who are in PAP status. That’s because if a resident enters in this status, the nursing home receives no reimbursement for their care until the case is approved and stamped with a number. In addition, it can take up to three months or longer to get an application approved. Plus, many of the nursing home representatives that I deal with are reporting that reimbursement from the state is currently nine months or more in arrears. In total, you may be looking at a year before a nursing home receives payment for a public aid resident. Therefore, most nursing homes are asking that a resident has at least one or two years of funds to pay privately before filing a Medicaid application.

Here are some issues I have encountered while searching for Medicaid beds for my clients. many of the nursing homes are simply not accepting anyone in Public Aid Pending status because their censuses already have too many residents applying or waiting for approval. Please don’t panic. You will find a bed for your loved one, but it may not necessarily be at your first choice of communities. If your loved one is currently at a nursing home for a Medicare stay (That is the federal program for short term rehabilitation at a long term care community.), and you know there is no way the senior can return home permanently, begin your application process immediately. Ask the Admissions Director if there is a Medicaid bed available so your loved one can transition from Medicare to Medicaid. If a bed will not be available, use your loved one’s remaining Medicare days as a bargaining tool with another community that might have a Medicaid bed available. That way, your loved one can transfer and their new home can be reimbursed by Medicare while you are filing the Medicaid application. The Admissions Directors are more likely to help you if they know the community is going to get some payment from Medicare while waiting for the Medicaid application to be approved. I will also note that many of the nursing homes want the prospective residents to use their, “financial specialist,” to file a Medicaid application, rather than using an alternative source. If the resident uses their resource, the home is assured of collecting as much private pay from the resident as possible.

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I have been receiving a fair number of requests to assist families with the placement of loved ones who have psychiatric issues. Many of them have had episodes with violent behaviors. Unfortunately, there are no easy solutions to these types of placement problems, and under no circumstances do these placements resemble a typical nursing home placement. A nursing home is simply not a dumping ground for a senior who exhibits psychiatric behaviors. If you call a nursing home to inquire about a bed for someone who has bipolar manic depression, schizophrenia, or Alzheimer’s disease with disruptive behavior disorder, it is likely the response you receive won’t be positive. That is because there is a real lack of Geriatric-Psychiatric (“Gero-psych”) care available for seniors around Cook, Du Page, Will, and Lake Counties in Illinois. For instance, there are only about 6 nursing homes in Du Page County that can handle psychiatric illness effectively. There are more in Cook County. Most nursing homes don’t have the staff with training to accommodate the one-on-one type of attention seniors with mental health issues require. They may be a danger to themselves and their fellow residents.

Here’s what you can expect if you enter the senior psychiatric arena in the Chicago metropolitan area:

1. Most of the homes that handle mental illnesses (Institutions for Mental Disease or IMDs) are at the intermediate care level. The residents are often ambulatory and many are not elderly. The residents need their medications administered to them and sometimes need help with some of their activities of daily living. Depending upon the seriousness of his or her mental condition, the resident may be allowed to check in and out of the facility on a daily basis. There is a lack of locked units that treat psychiatric illnesses that many seniors who wander require.

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As a senior living advisor, I recommend that my clients who are at the independent living or assisted living level take a trial stay at a long-term care community before they make a commitment to move in. This will allow a senior to sample the food, try the activities, socialize with potential fellow residents, and decide if they like congregate living.

Sometimes the communities will not allow a trial stay. At other times, it may be required that the senior stays for at least 30 days. Personally, I am in favor of the 30 day requirement, because a stay of two days or a week isn’t going to give the senior the ,”big picture,” of retirement community life.

A short stay or “respite” at a senior living community is normally treated like a regular admission. The senior may have to submit a medical history and physical form from their primary care doctor, along with the results of a TB test that is negative. This information ensures that a community can meet the resident’s medical needs. I recommend that my clients request the medical information several weeks prior to the anticipated admission. Collecting the information from a physician’s office can be extremely slow and often delays the admission process. Many physician’s will not complete the forms unless they have seen the patient recently. The homes also will not accept medical information that is too old.

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A recent article published in the Washington Post portrays a very biased picture of assisted living communities. The writer is a former Zen monk and journalist. I encourage you to read the article and take note of the facts that were left out of his side of the story.

The author writes the he, “decided,” to move out of his home at age 53 to an assisted living community because he had Parkinson’s disease. He neglects to mention the reason as to why he made the decision to move. Did he move because he wanted the socialization of being with other people? Was his condition becoming too complex to be handled at home? Were his funds being depleted? Could his caregiver have been experiencing “burn out?”

The article states that he knew his future fellow residents were going to be much older. Yet, he complained about watching his table mates, “waste away,” and die.

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There are approximately 44 million Americans who are caring for an elderly loved one. A recent article written by Terry Savage and published in the Chicago Sun Times cites that between one and two million people over the age of 65 have been abused by someone who cares for them. During the six years that I’ve owned my senior living advising business, I have never been witness to any suspected elder abuse until recently.

A respected colleague called me and said that a couple in their 80’s were in a very tenuous position, and asked if I would assess their situation with regard to recommending some senior living communities in the Du Page County area. When I called and spoke to one member of the couple, I was told that he and his wife weren’t interested in senior living communities, but would rather speak to someone who would help them integrate back into society via participation in activities at a senior center. He also expressed an interest in having a personal trainer come to the house and exercise with them. I told him I’d call back in several days with some contact information.

When I contacted him several days later with potential resources, his conversation with me headed in a drastically different direction. I felt that an onsite visit was in order, so I made an appointment with him.

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